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News & Information From the Team

Living with Functional Neurological Disorder (FND) – Sarah’s Story

3/5/2026

Comments

 
What happens when your body stops responding… but no scan or test can clearly explain why?

That’s the reality for many people living with Functional Neurological Disorder (FND) — a condition that affects how the brain communicates with the body, often resulting in very real and sometimes debilitating symptoms, despite no visible structural damage.

In Episode 4 of Diagnosed – The Day That Turns Your Life Around, I speak with Sarah from Lincolnshire, whose life changed suddenly in July 2018 following a severe neurological episode.

A Sudden Shift

Sarah had been living a busy, full life — raising a family, working, and constantly on the go. But everything changed in a moment.

What followed was a series of symptoms that included seizures, loss of speech, and paralysis — symptoms that were frightening, confusing, and difficult to explain.

Like many people with FND, Sarah’s journey to diagnosis was not straightforward. There were questions, uncertainty, and a lack of clear answers — even after receiving a diagnosis.

​Living with the Unpredictable

​One of the most challenging aspects of FND is its unpredictability. Symptoms can change not just day to day, but moment to moment.

For Sarah, this has meant learning to adapt constantly — physically, mentally, and emotionally.

But what stands out in this conversation is not just the condition itself — it’s the way Sarah has responded to it.

Rebuilding, One Step at a Time

Sarah speaks openly about the realities of living with FND — the frustrations, the limitations, and the emotional impact. But she also talks about resilience, determination, and finding ways forward.

From relearning basic functions to returning to work and now studying mental health at an advanced level, she has taken back control in a way that is both practical and inspiring.

This isn’t a story about perfection or easy recovery — it’s about persistence.

Why Stories Like This Matter

When people are diagnosed with a condition like FND, they often turn to:

Medical professionals
Online resources
Support groups

But what’s often missing is lived experience — the real, human side of what it feels like.

That’s what Diagnosed is here to share.

Listen to the Full Episode

Sarah’s story is honest, powerful, and deeply relatable for anyone navigating uncertainty around their health.

🎧 Listen now:
https://www.you-id.me/diagnosed-podcast.html
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